2017 will be the year for my youngest daughter's heart surgery. Honestly, I won't allow myself to think about it much because my mind goes into too much detail. I'm the kind of person that deals with the situation when it's time, then I tend to repress those emotions because they're too overwhelming. Fear is not reflective of my faith and can taunt me at times. My fear is "I don't want my children to suffer in any way". I would gladly take it for them.
As strong and positive as I try to be, the reality of Down Syndrome hits me in moments. I wonder how my daughter’s life will be in reality, not just in the positive fantasy I try to maintain. Every time she has an appointment with her cardiologist, I hold my breath and my stomach is in knots wondering if the MD will say it’s time for her inevitable heart surgery.
What I have to remind myself is that after the heart surgery to repair the AV defect she has, it will be a new beginning for her! Her heart and lungs will not have to work as hard. As much as I do not want any of my children to suffer or be in any pain, I have to face the reality of a necessary event for a brighter, stronger future for my daughter!
In any situation in life, we have to go through the fire to become stronger!
For one who is a parent of a special needs child or typical child, we see them fall as they are trying to walk. We see them cry when they are afraid or frustrated, but we give them comfort while in our arms. We encourage them to keep going and begin again as many times as it takes to accomplish the goal! Not only are we seeing our sweet children grow and continue to make milestones, but we are growing and learning as much as they are! I know as a mama of a 12 year old, 10 year old, and 9 month old, I certainly have and continue to gain wisdom daily.
Whether we are facing a new chapter of our lives, seeing a new stage our child is entering, or even facing a new beginning after our child's heart surgery, we can learn from the fire and be stronger for it! We should never forget, it's never too late to begin again until we accomplish our goals!
I write about life and family. My heart's desire is to educate as I am being educated, while inspiring and encouraging others through the beauty of Down Syndrome.